Please take a look at our Privacy Policy for more information. He’s tough, he’s strong willed and stronger for all he’s experienced.” His mum Keira shares their story. I hope that sharing our positive story goes a long way in giving other families hope.” The next day, Toby had another scan and we were sent to Addenbrookes for a biopsy to see if it was cancer. His symptoms were a low grade fever and a tummy ache. She is a wild and feisty little girl - our miracle baby. Tagged: personal story, childhood cancer awareness month. In September, 2012, Hans completed his fight against Neuroblastoma for nearly six years, he transformed into an angel. *Text to donate: Texts cost one standard rate message, plus your donation amount. Haven: Neuroblastoma Cancer and ROHHAD Syndrome. Toby hopes to be a professional footballer! Toby now just says “I had cancer when I was a baby, they took it out and I didn’t die.”. In January of 2011, Mike’s wife Kezia was diagnosed with Hodgkin’s Lymphoma, stage 3b. The hospital was actually quite a happy place, there were always smiles on faces and our Consultant was very positive. Then, in one month she gained 25 pounds and kept gaining. Then one Sunday afternoon, Toby’s dad Hovik was lying down with Toby, stroking his tummy to try and get him to sleep, when he felt a hard lump on Toby’s abdomen.

We are so very lucky.” Rory’s mum Emily shares their incredible story. Then Toby had his general anaesthetic and I remember thinking how small the breathing mask was - I was scared and worried for my little boy, he was so young and vulnerable. Toby was in intensive care for just over 24 hours and was up and about really quickly, bum shuffling down the corridors - three days later he was walking for the first time ever! Today, Ryan is a happy 13 year old.

I put the vomiting down to him being one year old and having a full his tummy. The care team didn’t know what the lump was and needed to move us to a bigger hospital. Toby was given an X-ray and we could see a lump the size of a grapefruit. ... During the month of September I am writing the story from her perspective to bring better awareness to Pediatric Cancer. Mike is in the process of starting a foundation to raise funds for neuroblastoma and using his blog to help. He was on double strength milk, didn’t lose weight and thankfully never needed a tube. Freddie was diagnosed with Stage 1 neuroblastoma when he was nine days old. “Toby hadn’t been unwell, apart from being sweaty at night and sick every now and then, but otherwise he was a fit and healthy baby. Rory was diagnosed with stage 4s neuroblastoma when she was just two weeks old and was given a 30% chance of survival. She was only 18 months old when she passed away. Oscar is like a different child now.



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